How exhaustion and stress affect autistic "symptoms"

Having had a bit of a manic week (with another one to come), I have been forced to observe the effects of being overtired both physically and mentally on how my autism presents.

I have often noticed, and it is hardly surprising that in case, life isn't already hard enough when circumstances are difficult, our brains and bodies seem to think it's a great idea to join the party and make it even harder.

This is clearly not just an issue for autistic people as it is natural to find our coping resources depleted when we do not have time or energy to engage in those things that normally keep us well in body and mind. We all notice that it is harder to maintain an even keel emotionally, to make good decisions, to look after ourselves and others when we are tired or stretched, but I wanted to talk about the specific effects it has on my autistic traits, in case that is new or of interest for anyone.

So without further ado - differences I have noticed this week:

Sound sensitivity
Being around a lot of noisy people, or a particular sound that normally I can cope with I have found overwhelming this week. When this happens I can't see a solution/escape and feel trapped which makes me even more panicky and overwhelmed. Being aware of this helps as I can sometimes rationalise and stop to look for a solution. Otherwise, sometimes one is provided by somebody who has picked up on my situation (a lovely person did that once this week!).

Lack of social filtering
I become more abrupt and less filtered in what I say. I forget to be socially acceptable and just say things as I see them. This can result in people seeing me as rude (understandably, as I probably am being rude!), weird or snappy, which is sad for me.

Tactile sensitivity
Labels in clothes that I normally don't mind begin to bother me! I also seek more regulatory tactile sensations such as my blanket, BFRBs (body-focused repetitive behaviours) etc.

Increased intolerance for change/error
Fairly self-explanatory. Change, the unexpected and people doing things "wrong". If I can buy some extra processing time this can sometimes be managed, otherwise the upheaval of trying to readjust my brain to accommodate the anomaly can lead to overload or use of negative coping mechanisms.

Increased intolerance for failure
Any perceived error on my part can also easily become overwhelming. The thoughts can easily lead to overload or use of negative coping mechanisms, feeding into my mental health disorder and trying to bring me back into destructive cycles of thought and behaviour if I can't engage in some CFT (compassion-focused therapy) techniques or counter the thoughts with something believable but less unkind.

Decrease in emotional regulation
Again quite obvious. It's much easier for me to become dysregulated by any little thing that may happen, and harder for me to bring myself back to functionality. I'm much more likely to have shutdowns or need extra time to use soothing methods and keep myself calm.

Decrease in ability to communicate
Even if I can cognitively rationalise what is happening, I am much less able to convey that to somebody else. It's like my brain shuts down that possibility so that even if I want to, I can't just tell somebody that I am having a problem and what that problem is. It's as if that is just too much, too big or important, or it would dissolve me or something. It's rather difficult to explain, actually.

Decreased capacity for being with people
People are just too exhausting! Because of the energy it takes to be with people, to think of things to say, to make sure they're acceptable things, to try and make sure I do all the right things in a conversation (answer questions with just the right amount of details, ask questions, but not the exact same ones, use the right level of formality of language, don't do anything stupid with your body, finish the interaction correctly, etc etc etc), when I am tired or my brain is full, I just don't have the capacity for much of this.

Bad sleep
It's very rare for me to sleep badly. I am the one who will sleep through anything, always struggles to wake up in the morning, steals all the duvet and kicks/generally bashes about Mr Peggy each night! But this week I was plagued by anxiety dreams, and a strange brand of them too, not just the usual ones but ones set into a nice life-like situation from a few years ago to make it particularly hard-hitting and the effects longer-lasting into the day (my usual anxiety dreams are about waves, tides or being late for things. Oh, and sometimes teeth falling out!). I also unaccountably woke up several times during the night and one morning even woke up at 5.30 wide awake. This is unheard of in the Peggy household (for me anyway!). And of course doesn't help the cycle of exhaustion.

Processing time
When the stress and exhaustion ramp up or last longer than a few days I also see a noticeable increase in processing time and brain speed. This can range from taking a long time to find words (just everyday ones like "handle" this week!) to taking things more literally than usual or not seeing the meaning of what somebody has said to me. Often it only clicks several hours after a conversation that I completely misunderstood what somebody was getting at! When it's really bad it even affects written communication if things are not spelled out completely explicitly.

There are probably other things as well, but just some quick thoughts, and an apology to all those who have suffered from my various deficits this week! It is frustrating when these kinds of problems come into play because I am normally relatively good at presenting a rough basic level of "socially acceptable" (and when I'm not it's usually for things that are "weird" rather than negative, like carrying a blanket with me or lying on the floor rather than being rude), so people are not used to making allowances for my social communication difficulties and just see rudeness/withdrawal/strange over-reactions. Hopefully the weekend will help, and by the time next week is over I can begin to get back to normality!

Review of William's Den

Not my usually blog post, but I just loved this outing. I had at least as much fun
as the person I took with me! https://www.williamsden.co.uk/

What an absolutely fantastic place! Having heard about William’s Den from colleagues in a special school, several of whose classes had visited for their summer trip, I decided to give it a try with one of the young people I work with. We were not disappointed! The site is great in that it provides and endless range of opportunities through carefully thought out resources.

There are many different types of resources, from traditional children’s climbing frame equipment with slides, ladders, monkey bars and more, to water play and sand play (with tethered accessories including funnels, pulleys, and all different methods of processing and exploring sand and water!), zip wires, sticks and planks for den building, balancing and whatever else comes to mind, tunnels and hills, wide open spaces (yet all safely contained), a wild grass meadow, mud kitchen, tyre swings of different shapes, a grass theatre and more.

It is a place where the imaginations of children of all ages can run wild. It is designed to encourage interaction (circles of swings instead of lines, and countless opportunities to collaborate on projects of all descriptions). It invites playful, exuberant whole body movement and children and adults of all ages can be seen running, climbing, balancing, tipping, hanging, stretching, falling, swinging, crawling and sliding as they play. If you want to know why I’m raving about that, visit www.jabadao.org. More and more research is highlighting the terrifying effects that our society’s lack of value in movement is creating. One study showed nearly 90% of children beginning school with physical development below expected levels, which impacts on learning in all areas. (And I’m so annoyed that I can’t remember where I learnt that! Here is an article that could have used the same source as whatever I watched or read.)

And if you’ve ever wanted to see an example of somewhere that facilitates learning through play, I couldn’t point you to a better site! Not only is it a natural environment for physical play and  collaboration and communication encouraging language and social development; the possibilities for exploring every area of the curriculum are tremendous. Real-life maths and science come into their own as children of every stage of development explore sand and water at their own level, filling, pouring, using pulleys, building simple or elaborate structures. Problem-solving skills are put to the test, and experimentation is invited as the resources are versatile enough that they do not just suggest one use, but can be employed however the imagination leads. Resilience, risk assessment and many other vital areas of psychological development are also promoted and supported through the environment. For sensory learners there are not just a lovely range of natural textures to touch with different parts of the body, but opportunities to create sound and experience vestibular and proprioceptive movement. As the young person I visited with is very mobile, I’m not the best to comment on the facilities in a physical accessibility context. Hopefully somebody else can! I would say most of the site is wheelchair accessible. There is a "disabled toilet" but I wasn't able to inspect and it is not advertised as a Changing Place. A person requiring a hoist would be unable to access the upper levels (and much of the equipment) as far as I know, but if a one or two person lift is safe this would enable use of many of the ground level areas.

The whole site is built responsibly with sustainability in mind. The play equipment is made from natural materials which are “pre loved” wherever possible (which also makes it aesthetically pleasing and a calm environment! On which note, I noticed as the day quietened down towards evening that there was relaxed but pleasant music playing: a welcome change from the tinny, jingly or slightly manic music often to be heard at play venues!), rainwater is harnessed to power the toilets, and even the floors and ceilings are made with waste and recycled materials. This is just a taste - for more see https://www.williamsden.co.uk/sustainability/. I can’t comment on most of the food, but if the ice cream is anything to go by, the cafe dishes out first rate grub (but there are also covered and open air picnic spaces), and as well as the usual knick knacks in the shop are some lovely toys which reflect the ethos of William’s Den (accordingly priced!).

And when you get tired there’s even a room upstairs accessed from the climbing frame with a beautiful view out over the surrounding landscape, with great big bean bags and some soft bricks for building if you or your child is in need of a more relaxed spell.

Staff are attentive, all areas maintained constantly to a good standard, there is a space to put your mobile number on your child's wristband if desired, there are food places with visibility to the play areas, and from outside one set of toilets you can also see through a large window to keep an eye on any remaining children or so your children can find you easily.

In a time when so much time is spent indoors looking at screens, interacting through technology rather than face to face, here is a place where the whole family can spend quality time interacting, exploring and developing. I can’t recommend it enough!