New Year Post

For the past couple of weeks I have had three or four pending blog posts floating about in my head, logically resulting in no blog posts actually being written. So I have sat down to try and disentangle them and transform them into vaguely intelligible form!

I'll start with the expected "New Year - looking back - looking forward - with a touch of sickening sentimentality" one. And then I promise I'll get back to autism! Some interesting things I've been thinking about to try and figure out enough to condense into bloggery... anyway...

As I have taken stock of my adventures with Brian during 2018 I have been pleasantly surprised by a few realisations. When I compare my current state with the Peggy of a year or a year and a half ago, I am experiencing things I never believed I would actually experience, and neither was I sure that I wanted to. Some of these changes have even come about in the space of the week or two that this post has been swimming in my mind, forming and reforming itself to keep up with my changing perspective.

A year ago I was working 50% of my full time job, only going in for half days and finding that something of a struggle. When I returned to full time I battled anxiety attacks most days at least once and spent an awful lot of time crying in bathrooms. This month I took my first day off sick and since September have only had two incidents at work that required support from others. Not a perfect clean record, but progress I could not dare to imagine a year ago.

Progress in recovery for my specific mental health condition (which I don't discuss on this platform) has flourished lately. The months and months of hard graft working for what I didn't believe I wanted is finally beginning to pay off. Sometimes I genuinely believe that getting "better" actually is better. Just the last week or so I have felt the first breaths of freedom from my disorder. I have hope of a life beyond: the life that I had wished I dared to believe in but couldn't risk.

I am learning to treat myself with compassion. To accept the days where I need to go at my own pace, not shower until lunch time, wear joggers and snuggle down with my pets. To be kind to myself when I “fail” or fall short of my perfect ideal. To turn down the social occasion without (with less…) guilt if I need to, to do what I can not what I think I “should.” To ask for space or time or explanation when I need it.

I am learning to participate in my own life, to risk making choices or allowing my preferences to show. To let the feelings happen. It hurts a lot. I chicken out very often. I don’t like it. I prefer the safety of numbing and ignoring the feelings with destructive behaviour. But I know it doesn’t work. I’ve tried it. It’s not sustainable, and it’s not the life I want to live.

To get this far I have had many months of therapy from a psychologist who has helped me understand myself, my “what”s and “why”s and how to help myself, and most importantly, shown me that I can and am allowed to help myself. Her consistent voice is beginning to counter that of the ED and tip the balance of whom I believe.

This being the NHS, our sessions are about to come to an end, and I am trying to take the lessons I have learned and allow myself to feel the fear and sadness that this brings. In some ways, I’ve only just begun to really be able to talk about the things that matter, and with another couple of months I could be better enough that I would be equipped to keep going. This lady has heard things I doubt I will ever utter to another breathing being (as well as enabling me to utter things to other breathing beings that I thought I never would utter!), and I have invested much into allowing her to help me. She has helped me a lot. I won’t see her any more, and all that knowledge will go away with her and I will be left with the understanding and skills she has shared, to go forward my own way. It’s a lonely, scary and sad prospect. I hope I will do her proud. And I hope that if I don’t, I will forgive myself, pick myself up and keep on trying.


And the wonder of the thing is that in just the few days since I wrote the last four paragraphs, I have grown in hope, in confidence of the possibility of that hope being fulfilled, and in assurance that I am on the right path and I want to be on it. I honestly didn't see this coming, and especially coming so quickly. To have that inner reassurance (and the amazing support of some stalwart Peggies rooting for me all the way) and strength before I finish my therapy is a completely unexpected gift that I couldn't be more thankful for. I'm under no illusion that I won't come across setbacks and crushing doubts as Brian fights back, but I know that freedom can exist on the other side and it is worth fighting for.

So here's to a year of stubbornly practising self-acceptance and self-compassion, exploring and enjoying the experience of allowing the stalwarts of Team Peggy to support me, and seeing how many breaths of freedom I can breathe.

Powerful yoga

This post is a slightly jumbled attempt to collect and process my thoughts on one of those unexpected transient moments that somehow strike deep into your consciousness and capture you, leaving a wash of thoughts and realisations across your mind. It might not all be correct or what I would like to think, but is my observations of what my Brian was doing. I wrote it only for myself but later thought it could be of interest to others in a similar situation.

Moments gone in a breath can leave a wake (on contrail...) to appreciate

My thoughts this weekend have been constantly drawn back to a comment made to me on Friday.

As I left my yoga class on Friday my teacher said I had worked well today. "Very powerful". That comment was unexpected and it had a massive effect on me. There was an instant emotional reaction. I'm not sure exactly what it was, but it was a positive one. I felt seen, I felt valuable, I felt that I had achieved something, that my work was "good"; I felt strong.

At that point I had no idea I was feeling all those things; it just felt good. But it kept coming back to me, and I was intrigued as to why such a small comment could have such a transformative effect. 

This teacher had seen my work. Had noticed, when I was just being quiet and not drawing attention, just working hard for myself. I have always craved that seeing from people. (Interestingly, I generally seek not to be seen: to melt into the background and be anonymous. To only be noticed when I choose, but this is the 'good' type of seeing.) People who pay attention to the things that are less easy to see. These are the ones who want to see, who really care. If you ask for attention everyone will have to give it. If you don't, the ones who are worth it will spot what is going on.

I thought perhaps he had noticed how hard I was working, how well I want to do (which as I write this, I realise is a little ironic in yoga...). Perhaps he notices each week how hard it is for me to relax myself. How I even when I manage, the tension creeps back within minutes or seconds and I have to work so hard to send it away again. Perhaps this is why he is so firm when he tells us to "Let Go". That nothing else matters right now except being here and breathing. Perhaps he knows how safe this makes me feel. Somebody else being so firm, instructing, almost ordering relaxation. I'm good at obedience, and being told to let go means it's actually OK to for once. One time I nearly just burst into tears!

Perhaps he sees some of my story. He once asked quietly about the marks on my arms, enquiring whether I was OK. I told him he didn't need to know; he didn't push for more and we've never spoken about it since, but I often wonder how often he checks to see how clear my arms are, or what he thinks when there are fresh marks.

Sometimes I have wanted to tell him, but I think it's better this way. A kind of silent understanding, and he responds in the best way for me, with strength and push. He understands that I need to work. No coaxing, no gentleness, but humour and strength, with care underneath. It's healing. Talking about it would complicate and mess it up. He's found the way to get to me, and wow, it works wonders. I feel like a different person after his classes.

He's probably completely oblivious!

So that's why commenting had such an effect, and it has had an effect like that before, when he's commented that my work was looking good today. (I think it's partly also that the comments are so minimal. No excess, no gushing or opinions, just a quick fact. Truth - thought through and genuinely about me, but objective and to the point. Feeling but few words. This is not overpowering but empowering, healing and draws me in to want more rather than making me want to push away.)

But why "powerful" in particular? Why was that so huge a reaction?

I often feel powerless? With anxiety, ASC and my mental health problem, it is easy to feel overwhelmed.

It made me feel strong and I don't often feel strong.

Strong is one of the few good feelings I really want, I think. It's not nicey nicey, smarmy and wishy washy. It's definite. A positive attribute I could bear to have. I can respect it in myself.

A first step towards self-respect??

It said I had done a good job. I really like doing a good job, and somebody knowing I've done a good job, but not because I've told them, and neither have they told anybody else.

It acknowledged my work to discipline my body and mind. Part of this is the being seen and part that I like to have control over myself. I often feel out of control so this is a bit like a drug to me. Is it OK to get this from yoga or is it feeding the control addiction?

I was receiving respect from him and this was good. Not just nice comments but true seeing, understanding and respecting.

The elephant in the room

Most people who know me will by now have some sort of idea that my mental health has been taking a bit of a battering recently. It's not great, my natural coping mechanisms are not healthy, and my work has been impacted, which is a line that I have always considered unacceptable to cross.

It's funny really, because I spend a reasonable amount of time promoting awareness of mental health issues and encouraging openness and conversation about mental health, yet I am still so very guarded about my own experiences. Perhaps I am not as stigma-free as I would like to think, or perhaps I just believe that I am somehow exempt from the compassion that I want others to experience!

BUT I am taking baby steps in learning how to live a better way.

I am learning to listen to myself, to act on the gut feelings I have about which situations I can manage when, and what I need to do in my unstructured time (or "down time" as those who don't frequent my work environment would say!). 

This isn't always fun or glamorous. It means letting people down (again unacceptable by my "rules"), letting myself down (cue even more Bad Brain Stuff), missing out, being boring, looking lazy or unreliable (another of my greatest fears).

As yet, admitting that I should avoid a situation doesn't even mean enjoying some quiet time to myself: it tends to mean a long battle with guilt, feeling worthless and useless, like a drain and a waste of time and space.

It is also risky: others may not agree with or understand my decision or preference. Those who know me well know that if I indicate a slight preference or wish for something to happen that is a sign that it is so enormously important to me that I have taken the risk to express it, no matter in how tiny or inconspicuous a manner. Those who don't will easily walk over the herculean effort I have made, completely invalidating it and making it even worse the next time I consider trying.

When I do succeed in listening to myself, articulating my discoveries and following through on them, and am stuck in that thought/feeling battle, I am learning to employ some "self-soothe" tools to help me to regulate and stay or become calmer. This is an approach introduced to me by my mental health team and is often used with people who experience high anxiety or distress. It may sound a bit whacky or irrelevant, but because of my awareness of the power of sensory experiences I had a fairly easy time embracing the idea (having said that, I thought I was doing it for about 9 months until I had one of those moments of revelation where suddenly something makes even more sense!). It still feels very wrong to care for myself when I feel that I have done something wrong, but I am learning that it is necessary and beneficial. It works really well as a calming toolbox for me, and with calmness comes the possibility of movement (both figuratively and literally!).

I am VERY SLOWLY learning to try and share with other people a tiny sliver of what is going on. I hate it. Every fibre of my physical being screams not to do it: it is like a complete block - a near impossibility. It is not safe at all in my mind, and fraught with risks and fears: I won't be able express what's inside, they won't understand what I am expressing, I will cause them discomfort (eg. fear, sadness, guilt), I will waste their time, they will be annoyed with me (even if they don't show it) or disregard the importance of what I am expressing, that they will think they understand, but not actually grasp it, and on and on and on. People trying to find out what is going on can make it even harder for me to share.

Occasionally by some miracle I manage to include somebody in what is happening in me (poor longsuffering Mr. Peggy and Ma Peggy and a couple of invaluable Work Peggies!). Sometimes it helps in some way. I'm hoping that through learning to talk about things with my psychologist it will gradually become more possible with other people. 

The "mental health" (or "mental illness") road is one that I am inclined to share even less than the autism road, but I think it is important to acknowledge it, even if not to go further in sharing it. Perhaps one day it will become as "OK" for me to talk about as my autism is now becoming, or perhaps not, but for now I will keep taking the little steps that appear before me which seem to be right to take.