I'm a person too, and that's OK

Sorry this is a long one! Think I'm guilty here of trying to tell the whole story and wittering on about something that could be said succinctly. And doing that very clumsily at times. But I can't be bothered to edit any more to make it pretty and readable because I add more instead of editing out!

I had a good reflection today.

In a group we were talking about self-esteem and assertiveness and I had a bit of a warm fuzzy thinking about how much I have come on in this area over the past few years. 

One of my core ideals is to be kind to others, to help people when I can and to have a positive effect on those I come into contact with and so for me people thinking I'm unkind, self-centred, rude, greedy or lazy is one of the worst things that could happen. I know I shouldn't care so much what people think of me but I do. Because I communicate in a different way from the majority of people (eg. I don't always realise the truth may be offensive - if I state the truth it is simply that, without judgment, but I think others infer a judgment and are then upset because they think I'm saying something is bad when actually I'm just saying something is) and my face and body language don't always convey my true feelings in the way people would expect, I have many times been misinterpreted and this has resulted in my beliefs, thoughts, behaviour and emotions gradually becoming more and more skewed in order to stay safe from being viewed in those upsetting ways that are so against my values. (Perhaps it seems so intolerable because not only is it upsetting but it's not true. It doesn't line up with the facts of who I am?) 

But recently I've become less black and white and learnt that expressing my own needs, thoughts and opinions does not necessarily mean other people's are squashed and that I am acting against my values. "Both of these things can be true" is a phrase I frequently come back to that really has transformed how I approach some aspects of life (when I remember!).

Back to self-esteem, thankfully I have never had the belief that I am a completely terrible, useless, rubbish person - I had some internal confidence in the things I had abilities in and in myself as a vaguely kind person. But... I did not esteem myself highly, or much at all. I didn't think I mattered. I would happily put myself in rejection or ridicule's way if it were a matter of someone else's wellbeing but if I needed something or felt hurt I would stay quiet. I downplayed abilities for fear of being rejected or ridiculed. I placed little to no importance on myself, my needs and my wishes. Although I didn't believe I was bad or useless, I somehow believed I was less important than others and that if there were any discrepancies the other person must be right. Put others first; don't presume upon anyone to put themselves out for you. I still think these are worthwhile values, but my brain is black and white and takes everything to its logical conclusion, so these become "your needs and wishes are not as important as others' and you must never inconvenience anyone." And then "you should be invisible and not need anything." 

Somewhere over the past few years I have moved on slightly. The therapy and support I've had has probably (definitely) helped! I'm not sure whether I have consciously tried to be more assertive in my communication (where previously I would have been passive because I was so worried that I would appear aggressive/awkward/obnoxious, offend somebody, inconvenience somebody or just that they would misinterpret and think I didn't care or didn't like them) or whether it has happened naturally as I have started to understand and accept myself more.

I was so scared of trampling on others that I daredn't exist. I still mitigate most requests with disclaimers and most refusals with apologies but I now place enough value on myself that I am more likely to express my needs or do what I need to. I don't (always) automatically feel guilty and that I am bad or wrong for stating honestly my perspective with respect and kindness towards the other party. 

And on reflection it's actually better for everyone if I am assertive (which doesn't mean trampling on others but expressing my needs and opinions clearly but kindly). Being assertive involves behaving with proper compassion (not just "niceness") to both myself and others, and gaining an understanding of this through therapy has definitely helped too. It's obviously better for my own wellbeing because I don't end up in burnout and resorting to unhelpful coping strategies (as much) - which would be reason enough to celebrate - but it can be helpful for others too. Looking at it the other way round, I feel much more settled amongst people who are assertive because I know I can ask them things because I know they will say no if it's not right for them. If I can't trust someone to say no then I can't ask them to help because I can't be sure they won't help me at their own expense. When I know people understand and are comfortable expressing their needs or opinions then I'm not worried that I will hurt them unwittingly. And so I can return the compliment by not giving people the extra work of trying to guess when and how to help me and whether my needs are being catered for. 

As we talked about what low self esteem can look like - including never saying no, always saying sorry, perfectionism, avoiding situations eg conflict or going out, not challenging self etc - I realised that I am much less like that than I used to be. Sometimes it's little things like saying "thank you" instead of "sorry" and other times it's bigger things like asking for help when I feel that I shouldn't need it, or saying "no" to something that will be detrimental to me. I have actually come a long way and that is great. Some of the things I have learnt have started to stick and although I still struggle with many thoughts and beliefs about myself and the world, some of those problematic areas have seen a shift. And the fact that I'm more comfortable with that says a lot in itself about how I value myself. Other things will be harder to change but it is helpful to notice that some movement has happened and that it is both acceptable and positive. Maybe other changes will eventually become acceptable too.

Edited to add: Searching for a title for this, I realised I am much better at referring to myself in the first person now - maybe I'm getting better at having a "me."

Fifty-Six Weeks

*Trigger warning: early pregnancy*

Feeding you at eleven fifteen I'm grateful. Changing your nappy and both our pyjamas at two I am thankful. Giving you Calpol at three I do not take for granted. Repeating it all at four, five and six AM is OK with me (for tonight at least!). 

A year ago today I found out about you: you were a bunch of cells the size of a poppy seed, two lines on a stick. I barely dared to believe you would stay around until I could meet you, and I tentatively told two people that I thought you were there. I couldn't even be certain and I knew how fragile your little life was and how unlikely to grow, and yet how amazing that it was there at all.

And here you are - here we are. Snuggling through the night with your bronchiolitis and post-immunisation fever, four months old in the morning. Four months after you joined us out here, eight months after we found out about you six months after I came home. One year of you - I can't begin to say how thankful I am for you, the you I didn't know whether could exist, or whether would stay and grow. Meeting you seemed too good to be true, yet here we are. You can never know all you have done for me, all you have taught me, all that you mean to me. I have all I could have asked for. 

Rambling

Probably my favourite walk I've been on since the teeny one came along. In the moment, mindful in the best sense of the word, and connected.

A dog has had a happy time here too!

Cool air on my face, muted quietness dulling the country sounds under a layer of cloud, and the contrast between the angular scrunchy stones waking up each spot of my feet and the soft springy damp turf. 

The smell of damp earth and trees. The silent swoop of a buzzard. The warmth and gentle breath of the baby sleeping close against me in the sling. His coos and curious expression as he wakes up and looks around. The patterns of the spiralling straw in its bales that mirrors the perfect swirl of hair on the back of his head.

The shadows and changing light in the furrows of the ploughed fields as twilight falls. Relative freedom from memories as I stay present in the moment, walking in the more agricultural areas away from all the trees that carry the strongest reminders, and giving thanks for all the good things in my life, and for hope.

Reclaiming Autumn

Over the years I have often written about how being outside and spending time with nature helps my mental health, reduces my stress levels and keeps me better regulated. Closely observing the changes and small wonders of autumn, winter and spring has got me through some of the most difficult times I have had.

The only trouble is, because the things I was experiencing were so intense and the solace I found outside so important, the two became thoroughly entangled. Last year autumn no longer helped me but brought memories and emotions back that were overwhelming and distressing. I avoided spending optional time out and about this spring for the same reason. I am still only posting pictures from this year even though I have more beautiful ones from before. 

As summer once again turns to autumn my mind is spending a lot of time in the past, as I've come to expect. But I think that this time the emotions are a bit less overwhelming, and although the thoughts still intrude when I may not want them I am more able to think about things rather than just feeling overwhelmed and wanting to get away. 

Sure, it's still causing problems, but I decided to take little steps to reclaiming autumn. Change comes along naturally when there's a baby in the family so it seemed a good opportunity to jump on the bandwagon and try to get back some of the benefits I lost when my source of respite got tied up with the thing I needed respite from. The longer I left it the harder it would get.

So last week I took Baby Peggy for a walk to collect some autumn for him to play with. Doing things with a purpose and for his benefit helps to motivate me and to help me focus on now rather than then. There were and are memories and emotions and thoughts drawing me to the past, but there is also joy in what is happening now, and positive anticipation for his future and autumns to come, rather than just my brain's story about what autumn should be.

Switched up the
toys on his play mat

I jazzed up his
mobile with leav

Bringing some autumn into the house where I can't avoid it helps to disentangle the associations and make new connections. I can't delete things from the story and it probably wouldn't be wise to, but I can add to it and make some choices about how the new and old plot lines interact. 

Raw and Real

A baby is unfiltered, unrestrained and unapologetic. It is entirely authentic and neither hides nor tones down its emotions or needs. Its enthusiasm is unbridled, its sadness wholly embodied and its affection genuine and unmistakeable.

Baby Peggy does not stop to think about how his feelings or requirements might affect me and Mr Peggy and he is not worried about offending anybody or putting them out. He doesn't rein in his displays of emotion in concern that he's being annoying nor because he fears being overwhelmed by them: he simply is. When he is cross he is cross all over and when he is content he is blissfully relaxed. His smile and attempts at giggling are infectious when he is altogether engrossed in playing with Daddy. 

And do you know what? Yes, there are moments when I just want to be asleep or when I (strongly!) begrudge having to get off my backside to change yet another stinky hind quarter. When I literally want to bang my head on a wall because it's all too much. But I marvel every day at the beauty of this boy and his wholeheartedness.

There's no extra layer, no ulterior motive, no people pleasing or game playing. A baby is straightforward and unapologetic. You may take him or leave him, but what you see is what you get, and the things that you get are infinitely richer for their authenticity and un-self-conscious-ness (definitely a word).

It is refreshing and renewing to be with a person who is so generous and unconcerned in sharing of themselves.

I aspire to be more like my baby and I am infinitely grateful to have the honour of being with him and learning from him.

I think what he is missing is shame. The fear of rejection is what brings the feeling of shame, and how powerful that is. How sad that our longing for acceptance so often hinders us from fully embodying our broad range of states of being. May it be a long time until he experiences the rejection that hardens our shells.

He is also missing the fear of becoming overwhelmed by his emotions. Perhaps this is a less universal experience for adults than the feeling of shame, but it's no less important. At the moment Baby Peggy relies almost wholly on mutual regulation. Mr Peggy and I comfort him when he is sad, hurt or scared and he knows he is safe with us. He stops crying when we pick him up (well... not every time!) because he is secure in the knowledge that he is OK now. Hopefully he will learn that it's OK to fully experience his emotions and that they can be attended to and soothed in whatever way is applicable and that he will be OK afterwards. That way he will feel things at the time, deal with them and move on, just as he does now - no trying to squash them in case they get too big when all that does is means they come back later. 

Because Baby Peggy is so true and uncomplicated, I know how he is feeling and when he has a need, and I can meet that need. He depends on me and that's fine. He is not meant to exist in isolation or be self-sufficient. As he grows there will be more and more things that he manages independently, but perhaps we make a mistake when we try to live as though this is a phase that we completely outgrow as we age. Little steps can help to start to turn this view around, like saying "thank you for helping" instead of "sorry for being a pain."

Thanks little one, for showing me how rich and beautiful an authentic, vulnerable, dependent life can be.

Two Years

As I lie in bed trying to sleep, knowing I will be wakened in a few hours, I can't help my mind taking me back to another night two years ago today. I've kept busy all day but there's nothing between me and the memories now.

The hard mattress and yucky polyester sheets. The knowledge that I would be wakened in four hours, my lights turned on, my blood pressure, pulse, sats and temperature taken and my finger pricked. The terror of realising each and every time I regained consciousness that I was in this unknown place and I had to face the thing I was most scared of four times a day. Traumatic as the general hospital was, I had come to understand it and therefore feel some level of safety but now everything was new and overwhelming all over again. 

That morning as I stepped over the threshold with fear and hope, I had taken some of the most important steps towards my new life. Of course it's not actually clear cut like that, there is no line between old life and new life, I have not "arrived" anywhere and am very much just continuing to take steps every day, in varying directions.

But there are some things that were left at that door that I am endlessly grateful to be rid of. They had no place in my life and I never want them back. Others I have picked up to help me since, and many many more I still carry, for better or for worse.

It's always a difficult time of year for me: my brain works by making links and finding patterns, and so it is great at highlighting similarities and differences between experiences while it tries to organise and categorise everything in order to understand life and inform itself on what might happen next and how to deal with it.

And so it reminds me in my thoughts about events that happened on certain days (like today), and it reminds me in my body of experiences I sensed or emotions I felt (like the leaves turning orange and falling from the trees, or the cold morning air or a particular timbre of beeping). The two often become entangled or the one prompts the other as well. The trouble is, my poor old Brian can't decide whether to categorise these things as good or bad (they were of course a mixture) and how they should inform my future actions. I don't know what I feel about them and my brain is so intent on trying to make a logical map from them that they just keep swilling around because they can't be filed.

Life is very different now from how it was two years ago. I've been trying to write this post for two weeks - this is the end of about six weeks of annual date-specific memories - and could never find quite the right words. My life is better. I am more independent. I am happier. I have more freedom. I share more about my wellbeing with Mr Peggy. I have better support. I am much more able to ask for help when I need it. I have better coping strategies. I live a more authentic life. I have Baby Peggy. 

That time was probably the hardest in my life. I certainly had most of the most traumatic single moments of my life so far (and hopefully ever!) during that time. My stress levels were permanently so high that meltdowns were routine. But I also found hope. I met some of my closest friends. I reclaimed parts of my life I thought were lost. I found out a bit of who I am when I'm not trying to hide (because there was nowhere to hide). I let people in and I let people help. It hurt and it helped. And so I don't know how I feel about it and I don't know how to write about it. 

A therapist I saw recently helped me make a little sense when I explained that I wasn't even sure whether it was even trauma I was dealing with: because the events, experiences and feelings all happened in one time span and space that definitely had some traumatic events, it all gets lumped together by my brain, and so even parts that I wouldn't think should be traumatic still inspire some of those feelings. The emotional response is so complex because all of the different emotions are related to things that happened at that time, and so whenever I am reminded of any part of it, I just get a big ball of unidentified emotional mash. (She didn't quite phrase it like that!) I wonder if it can also work the other way - that because some wonderful things came from it I can feel mistakenly positive about the bad bits.

So I don't know how I feel about it. And still the memories swill. Hopefully one day they'll just trickle by harmlessly. 

Until then? Just keep swimming...

And be grateful for what I have right now, which is more than I would have dared to hope for through my tears on the hard mattress in the middle of the night.

How close to crazy?

Note to self: be less crazy.

I've developed a habit when distressed of repeating a short calming phrase to myself and Baby Peggy. It's quite effective but I think it makes me sound more crazy than I am. Or maybe I am just more crazy than I think I am.

Pacing around repeating "It's ok, we're gonna fix it, it's ok. It's ok, we're gonna fix it, it's ok" (or similar) is not normal behaviour. But it does help! The rhythm of the words, and the reassurance of telling myself that it will be OK even if it's not now can help to stop me escalating further. The sameness of the repetition can eventually smooth the seam of transition between distress actions and problem-solving, de-escalation or "moving-on" actions.

But it is disturbing for others to see (or rather, to hear), particularly if preceded or accompanied by an even more dysregulated presentation of crying, flapping, shaking, self harm, being a ball in a corner etc.

I don't know where the balance lies between helping myself and not being a nuisance. Sometimes it feels as though I can do little about it even if I wanted to and that these are ways to stop anything worse from happening. I have had to accept that being inconspicuous as I would like to be is just not always realistic.

I don't know whether it was the repetitive phrases or the general presentation or the fact I had a baby with me but I obviously went one step too crazy this time. 

It had already been a difficult day on a backdrop of raised stress levels. Meltdown 1 had been surfaced from after two and a half hours of recovery, and Meltdown 2a had avoided escalation by furiously (manically? desperately? absently?) continuing with my previous plan of action. I should have known (and probably did know) that Meltdown 2b was pretty much inevitable if anything even slightly untoward were to greet me.

Which of course it did in the car park of Aldi, in the form of a lady unloading a trolley in the back of the space I was reversing into.

The car was half in and half out of the space, waiting didn't fix it and instead the lady started to gesture to me (I was too stressed out from earlier to process that her signals meant she needed me to move out of the way so she could get the trolley out of my way), the baby started to cry, and I was expecting an important phone call at any moment.

Executive function swanned off entirely so I just could not work out what to prioritise or in what order things needed to happen. Or even what things needed to happen! Luckily having a baby makes it simpler in some ways as they trump all else on a fundamental level that can usually penetrate even the depths of my problems. Start with the baby and hope the rest follows. 

Of course, starting with the baby meant getting out of the car, which meant the problem that involved another person put itself all over me while my brain was still offline and in basic "comfort the baby" mode. It could only do one job at that moment - language was pretty much absent other than repeating a comforting phrase. Responsive language, problem solving and social interaction were way down my brain's priority pathways and out of reach. So I was largely ignoring the other lady in order to do the thing I needed to do first.

I would have got through, and indeed did get through, all the other jobs eventually, it just took longer than for other people and I looked more unusual whilst doing it.

And so I worked through the backlog of tasks and got onto the supermarket shop about fifteen minutes later. (The lady solved the problem that involved both of us in the meantime, which took a job off my list!) Order restored after a really difficult afternoon.

And then the bit that made me realise once again that I'm actually a crazy person. A couple of police officers wandering up the aisle opposite. Not hugely unusual in the town where I live so I carried on as normal. But it turned out it was me they wanted. The lady had been worried enough that she had sent the police to check on me. 

They were very calm and as discreet as they could be and we just had a little chat and they left me to it (although they did wait outside the shop and check on me again when I got to my car!) but it was a new experience for me and not entirely comfortable. I know I can be unusual and do become distressed at times, but generally I find my way through things and don't tend to cause others a problem. When this happened I felt even more conspicuous. I felt embarrassed being talked to by officers in public. And I felt acutely aware that I needed to present myself in a very "normal" manner or it would be so easy to suddenly find myself on the wrong side of crazy, popped into a van and detained for assessment. It's the second time I've had a possible close shave with the mental health act and it makes you feel suddenly very vulnerable.

I suppose I am grateful that somebody cared enough to make sure I was OK (I had assured her that I was, but clearly hadn't convinced her), but the whole thing left me unsettled. I realised when I went out the next day that I was really quite anxious. Anxious I would have another meltdown - they are not fun and because of the high distress of that day as well as the pre-existing background stress factors I am now feeling much more like I did eighteen months ago than how I've been feeling recently - and additionally anxious that if I did, someone would report it and I'd end up on the wrong side of crazy, with people saying I can't look after my baby or sectioning me. Until yesterday I felt less anxious in public than before having a baby: I know how to act with a baby, I know the conversations off by heart, I know how to behave with a baby, I have a purpose so am not occupied by trying not to be weird etc.  But now I feel more anxious instead, because of other people's responses to me doing what I need to do. And I also start to question the confidence I had in being able to look after a baby. If I can get that distressed around him then am I really fit? I hope I am, but it has shaken me and knocked my confidence. It has made me a little paranoid in public and much more likely to mask, which is widely recognised as being detrimental to wellbeing (also borne out by my personal experience).

So I guess I have to once more examine the balance of how much "me" is acceptable, and how close to crazy is too close.

But for the minute I'll just snuggle down with Baby Peggy, go for walks away from the people, and try to let my brain get back to "now" me instead of year-and-a-half-ago me.

Some "rest the brain" activities